The woman who went to the toilet of the disabled due to rare disease, stopped the staff, then …

There are many such rare diseases around the world, which is surprised to know about. It is also difficult to tell someone else about these diseases. But many times there is such compulsion when we have to show the evidence related to the disease to others. The same happened to a 29 -year -old woman from Britain, named Aven French. Aven’s life was changed by such a disease, which only two out of millions. Awen, a resident of Kent, England, recently shared a painful anecdote of his life. Aven told that once she started going to the toilet of Divyang people in Greg Store (Supermart), she was stopped out. Then when Aven showed things related to his illness, he was allowed to go to the bathroom. The case is of April 2024, when she went to use the disabled toilet present at Sheerness Gregs Store.

Aven told that as soon as she started going inside the toilet, an employee stopped her and told Talkhi, “You don’t look disabled.” To this, Aven angrily replied, “How do you know?” But he did not agree, then in compulsion he took out his catheter bag and showed, “Does it make me disabled?” The employee was silent and Aven immediately got permission to go to the toilet. In a conversation with the Daily Star, he said, “I had to prove my illness in front of everyone. It was very humiliating.” Actually, the root of this insult was his rare and chronic disease. In July 2024, doctors reported that Aven is a rare disease called Fowler Syndrome, which holds the urethra. This makes it impossible to urinate. This disease is so rare that in millions, only two women fall prey to it every year. In early 2024, he was repeatedly urinary tract infection (UTI). In such a situation, Aven went to show doctors.

After investigating, the doctors then considered the reason for the tension of missing jobs and breaking up in November 2023. But within a month, Aven had four UTIs. In such a situation, his ultrasound was done, then the truth was revealed. The report showed that two liters of urine was stuck in his bladder, while the normal bladder keeps just 500 ml. In such a situation, Indewing catheters and leg bags were installed for his treatment in April 2024. These catheters do not cure the disease, but help in extracting urine, as the fauler syndrome is a chronic condition, which has no permanent cure. He was later applied to a suprapubic catheter, which drains the bladder from the lower abdomen. It has to be changed every 8-10 weeks and increases the risk of infection. Many times he got “unbearable pain” due to the catheter stuck. But the bag of urine has become his life. Wherever she goes, she has to be kept with her. Because of this, he was also stopped at Gregs Store. But now after the video surfaced, the Gregs Store has apologized for this incident. Aven said that people feel that disability should be seen, but my illness is not visible from outside.